This article is about Rafl Kopelan, a 5 year old girl diagnosed with a rare disease called epidermolysis bullosa, a rare connective tissue disorder. This rare genetic disease causes Rafl to be covered head to toe in blisters, with the slightest amount of friction. Her organs are also affected by her disease, it damages her heart, eyes, and basically everything. Not one part of her body is unaffected by EB. Because this disease is so rare, there aren't many treatments for it and there isn't a cure either.
http://www.cnn.com/2013/02/23/health/rafis-run/index.html?hpt=hp_c3
The struggle in this article is struggle against circumstance. Rafl was born with EB and unlike other children, she has to live everyday with the pain of being hurt just by hugging a stuffed animal. Her family also struggles with finding the necessary treatments that would at least make Rafl's everyday life better. Though I can't imagine the pain Rafl has to deal with physically I feel that she is surrounded by those who love her. Her family and neighbors all create fundraising events to raise money and spread awareness of EB. In this way, Rafl Kopelan is very lucky.
